The staff at Kentucky Children’s Hospital kept telling them their infant son, Waylon, was recovering well from surgery. There had been a few bumps in the road, to be sure, but they said that was normal for a baby born with a severe heart defect.
Months passed. Waylon remained in the intensive care unit. More complications arose.
“Is everything OK?” the Raineys would ask.
Yes, the doctors and nurses assured them. Everything was fine.
Then one day, Tabitha Rainey says a cardiologist took her aside.
“She said, ‘If I were you, I would move him,’ ” Rainey remembers. “She told me we should take him somewhere else.'”
A few days later, the Raineys arranged to have Waylon sent by helicopter to the University of Michigan. By then their son, not quite 3 months old, was in heart failure.